Is the week over yet? As someone with late stage liver disease I am bending over backwards to juggle a full time job and my medical commitments.
It takes me several weeks (6-8) to schedule anything with my hepatology team and I desperately need an endoscopy. Last minute, we agreed it would be this Friday.
Well, they just changed it to tomorrow. I spent 45 minutes on them, had to explain to my gastroenterologist’s assistant an endoscopy is “a camera that goes down your throat, not up your rectum” and after having Monday off and medical complications preventing me from work yesterday, I simply can’t just bail on work tomorrow (I am borderline ready to be fired as it is).
I am spent. My days are long and uncomfortable, I spend thousands of dollars on medical care and am underpaid, and I might as well let my liver atrophy if this is how one of the top transplant hospitals will treat me.
What do I do? I need to stop crying so I can lead a work call. I’m not thinking of a relapse but I am having a breakdown that’s bringing out rage, horror, sadness, and I legitimately don’t know what to do.
Any words of advice?