This my daughter Maddie.
She has a terminal illness called Mucopolysaccharadosis Tyoe 3c, aka Sanfilippo Syndrome Type 3c.
Essentially, it’s Alzheimer’s/dementia for children.
There is no treatment.
There is no cure, except death.
Her disease is very rare as it affects 1 out of 1.5 million children.
Typical lifespan is about 13-25 years. Madison is currently 13, but doing well. Her cognitive functioning,movement, and emotional intelligence still continues to decline.
This is my sadness.
